|
|
|
|---|---|
|
Related to/Also known as |
Rare disorders, rare diseases |
|
Description |
This page is not about any specific condition; however, it does link to websites for people with rare conditions. |
|
Useful National contacts |
Rare Disease UK (RDUK) is the national alliance for people in the UK with rare diseases: Rare Disease UK, Unit 4D, Leroy House, 436 Essex Road, London N1 3QP Eurodis, the voice for rare disease patients in Europe, organizes the annual International Rare Disease Day: RareShare is a unique social forum, building communities for patients, families, and healthcare professionals affected by rare disorders: National Organization for Rare Disorders (NORD) is an American organization. 29th February 2012 is International Rare Disease Day www.rarediseaseday.org |
|
Our resources |
The library at Neurosupport has a range of reference resources on neurological conditions and on a wide range of disability related issues. The Information Officer is able to conduct internet searches to identify any relevant materials on rare conditions |
